Building Actionable Rare Disease Registries in the age of EHRs to Power Personalized Medicine - Lessons Learned in Standards, Data Models, Data Engineering, Patient Inclusion, and Regulatory Challenges. | 0 | 0.34 | 2020 |
Addressing the Medical and Business Challenges in the Creation of the CureCloudTM, a Prospective, Linked, Direct-to-Patient Multiple Myeloma Registry. | 0 | 0.34 | 2019 |
Toward Quality Improvement Through Better Usability - Applying Research on Health Information Design to a Quality Improvement Scorecard. | 0 | 0.34 | 2018 |
Mental Health Informatics Panel. | 0 | 0.34 | 2017 |
RexDB & GSM Provide Iterative Cohort Selection for GWAS: A Case Study of Gains through Interoperability of Two Open-Source Technologies. | 0 | 0.34 | 2016 |
Configurable Permissioning to Address Diverse Data Collection Needs. | 0 | 0.34 | 2016 |
Data management in clinical research: Synthesizing stakeholder perspectives. | 0 | 0.34 | 2016 |
Using Quality Data Model (QDM)-based Quality Reporting Document Architecture (QRDA) to Collect both Electronic Clinical Quality Measure (eCQM) and non-eCQM Data for a National Registry. | 0 | 0.34 | 2016 |
Delivering Integrated Research Registries in Academic Health Centers. | 0 | 0.34 | 2016 |
NIH-Sponsored Effort to Develop an Open Source Electronic Data Capture Instrument Converter and Library of Open Source Research Instruments. | 0 | 0.34 | 2016 |
An Open Source, Integrated Data Management System for Medical Registries: A Case Study using RexDB®. | 0 | 0.34 | 2014 |
An Institutional Strategy to Support Clinical Research with Centrally Managed Custom Data Repositories. | 0 | 0.34 | 2014 |
HTSQL and HTRAF: An Innovative Platform that Enables Rapid Delivery of Web Applications and Helps Researchers and Funding Agencies Make Better Use of Mental Health Data. | 0 | 0.34 | 2013 |